Hi Pam! I tried that Lyrica and it did nothing to take away the pain, numbness or tingling. I have heard that Cymbalta was pretty good and helps with pain, numbness and tingling. Supposed to be a good drug. Me being hypersenitive though I’d rather stay on the Gabapentin. See I take Ibuprophen for my pain and when in severe pain I take Tylenol with Codiene but only as a last resource. Your problem though is that liver problem. Some meds if you have any kind of liver damage can be more harm for the liver! Between my choices of meds for the numbness and tingling. Gabapentin to me is the better drug and much cheaper in cost. I take two at bedtime a total of 600 mgs and then my Clonazepam. And have been sleeping very good at night. Takes away that buzzing at night in my body. Every now and then I get a bad spell but not as bad as before! It helps alot with pain. I think I would talk with your doctor about getting on Gabapentin or Cymbalta. Gabapentin though is much cheaper in price and has less side effects. Ibuprophen though with your liver is not a good idea. Ulltram ER and Celebrex are really good pain meds. The Ultram ER is the best one but not sure if it’s toxic to the liver. Talk with your doctors about switching to these two meds and see how they work. I think they might help you alot. But find out first if you can take them because of the liver! Lyrica did totally nothing for me when I tried it! It was a much weaker feeling drug and did not even take my pain away at all! And made my numbness worse! Hope this helps Pam!
Hi Pam! It’s bad enough loosing your legs but then when the arms go too it’s really frustrating. My arms too are not as great as they used to be but at least I am trying my best to keep using them. My arms go out completely, I just won’t know what the heck to do with myself. They are about the only thing I have working. When they feel like it! Hugs
I was diagnosed with Sjogren’s Syndrome five years a go and then MGUS, Fibro, and other diagnosis. I was disabled by these.
I’ve been on Arava for the Sjogren’s for over a year.
I’ve been on Prednisone in the past for Sjogren’s flares. I was off of Prednisone prior to this hitting.
The MD’s have hit me with so many meds as my symptoms were climbing rapidly to my chest.
My lab values and blood work show that my auto immune system is in complete overdrive and they are attempting to get it to calm down and stabilze and then can work on getting me off of Prednisone. Which I hope is soon, as it has so many side effects.
Yes, I had a loading dose of IVIG and 7 days later he started me on the CellCept and increased my Prednisone from 60 mg to 80 mg.
I have a Rheumatologist also working with the Neuro.
It is encouraging to hear that even a year from now there may be improvement.
What is your level of activity now?
Thanks for your kind words and have a good day.
Its only been a week but the change is very real, Ill keep you informed in a week or two. I really hate taking pills, I take 4, 8 mgs a day the 8s are huge I was trached and have trouble swallowing, I have to take them with apple sauce. Im really surprised at the change, thats why I started this thread, so far I dont think im any more tired than before but its hard to tell Ill keep an eye on it. Gene