Hi Mary Beth!
I started out with Sensory Neuropathy and then it went into CIDP. I get my first IVIG’s this week. I hope! They said they were going to do it because I am having surgery. But we shall see! Just hope it works for me! This is a wonderful loving site to be in. Really great people in here. And everybody is so nice! Hope you get well soon! Take care!Hugs
Hi Mary Beth
Like Kazza, I had tremendous trouble with balance, etc. I have been doing Pilates exercises and balance exercises using a ball for about a year and a half now. It has made a huge difference. Pilates focusses on your core, and when that is strong, it helps your posture, but also to make more deliberate moves – to help prevent falling or misstepping.. I also find that using the ball to help with stabilising yourself is really good. My balance has improved alot; like Kazza you have to kind of “remind” your body of what it is supposed to do.
I went to a Physiotherapist (Physical Therapy I think in the US) here who had a Pilates setup. She started me on the really basic things – we basically did a rehab program.
It costs me 10$ each time to use the gym for 30-45min, and I see her to get a new programme when I feel I need one – that depends – every couple of months – that costs abit more.
I bought myself a ball for home so that I could do some exercises there as well.
It has made a big difference for me with the sensory issues. I went through a bad patch and didn’t do any exercises or pilates for about 3 months and I could feel the difference. I still can’t feel my feet….but you can’t have everything!
Take care and I hope that things start to improve soon.