Hi Kimberly! I still have nights of where I can’t sleep but not as bad as it was in the summer! Actually started getting better. But when my lupus acts up I stay in pain. My sed rate is always high because of inflammation. I plan on mentioning this to my doctor when I see him in February. So far I have done great with my thyroid removed but when I have nights of pain I can’t sleep either. Maybe the cortisol will work. I think he tested me for that but not sure for I do not have the lab reports from him from my last visit. Getting ready for bed now and am hoping I sleep! Hugs! Good to see you again in here! Missed ya!
Hi Kimberly! Welcome to the site and I’m really glad to see your posting. I have Lupus and now CIDP. But still be worked on the CIDP trying to find the cause. I have tried all kinds of drugs trying to get some decent sleep and yo no avail, nothing has worked for me. I went to bed tonight and went into a deep sleep to wake up and 11! What a bummer!:(
Sometimes I get maybe… if I am lucky 6 hours. After 3 days the exhaustion sets in and then I may see eight. I had a sleep study done and now have sleep apnea. Have a follow up for CPAP fitting.
Seen some nights where I get only 1 hour of sleep. I was told by my doctor on Tuesday that alot of folks with auto-immune disorders can develop sleep apnea and end up requiring a CPAP for helping the airway better at night! When I get that machine, I will post and let you know if it works.
I get so tired of not seeing sleep. 3 years ago, I slept like a baby. Now I see a sleep pattern that is totally a miserable thing to go through, but I have bee dealing with it.
You may want to talk with your doctor about having a sleep study. Your airway might not be fully healed and need the extra air for sleeping. At night your body while trying to sleep maybe working overtime and can’t take the load.
Hope tonight you are sleeping in peace! Hugs