[QUOTE=gab111]Actually my friend has arranged a very accessible trip for us to Niagra falls in two weeks.[/QUOTE]
Bundle up warmly…it could be a wee bit chilly around the falls at this time of year. If you get a chance, take a short drive up the parkway into Niagara-on-the-Lake. It’s a nice area with several wineries, theatre etc. You may find the city of Niagara Falls a bit tacky – it caters to the tourism industry. But the falls themselves are awesome. I’m not sure if the Maid of the Mist is wheelchair accessable, but if so, it is a memorable way to see the falls.
When you mention the cost of IVIG, for sure Rituxan would be less. Sounds like the Cytoxan would be worth a try at lower doses like you say. I certainly hope that one of the alternate medications will provide results for you. I’m sure that if I had as positive an attitude as you, I’d have done 500 km this year instead of 200!!
I have an appointment with my neurologist on Tuesday which I am quite looking forward to, as I don’t know what the next step will be for me. I’ll report back afterwards on the findings.
Enjoy your trip to Niagara Falls.
Hi Gabrielle! Pleasure to meet you. No treatment for the nerve damage since 1992. I have been getting treatment for lupus and B12 but the treatment for Lupus stopped 6 years ago and for 6 years I have insisted the B12 or Lupus was eating my nervous system up.
Just recently had spine surgery too and two weeks after that surgery my immune system went haywire! But I was already suffering.
The new doctor wants a nerve biopsy in hope we can figure out what my problem is. After that biopsy I hope they can treat me.
I feel like I am dying a slow death! So praying that I finally have the answers all along. I am very medically knowledable on some things but there are so many diseases out there and I have been a diagnostic challenge. Thanks for sharing with me!