Hi Carolyn!

Anonymous
October 9, 2008 at 3:52 pm

Hi Carolyn! Bless your heart! I think maybe trying what some of the other’s suggested. Maybe the PP instead. 5 months and that is a very long time! Certainly very costly too! I hope something comes up for you that will be treatable and get you better! Sending cyber hugs your way!

Hi Carolyn!

Anonymous
October 9, 2008 at 9:37 am

Hi Carolyn! I sent you a private message! Hope you get a chance to read it! Hugs!

Hi Carolyn

Anonymous
October 8, 2008 at 8:32 pm

Hi Carolyn! An email to that Chapter might be a good idea. They will most likely contact you back and let you know what things they could use or volunteering as maybe a Liasson or Assistant Liasson. They would most likely be the ones that would be able to answer your questions. But an email can’t hurt!

Hi Carolyn!

Anonymous
September 14, 2008 at 2:16 pm

Hi Carolyn! I hope you feel better soon and they get you help too! I’ve been there just like you and it is frustrating dealing with a doctor that don’t listen or care! Not all of them are bad but there are a few that want to go by the book and sometimes going by the book can cause alot of problems for the patient. Hope you find a better doctor that will make you well again! Hugs!
Linda H

Hi Carolyn!

Anonymous
September 12, 2008 at 7:00 pm

Hi Carolyn! Bless your heart! I think it might be best to call your doctor and let him know what is going on. He might have to increase your dosages or change the treatment plans for you!
I hope you get better soon and hate to hear that you are feeling badly! If you feel like this is getting really bad, then I would go to the ER if you can’t get in touch with your doctor. But I would try my doctor first and see what he thinks would be best. You can’t reach him, then the next step would be getting into the ER. Just hope you can reach him! Good luck Carolyn!

Hi Carolyn!

Anonymous
September 2, 2008 at 7:36 pm

Me having Lupus and CIDP! I get scared period when I get sick having that fear of getting another attack on my nervous system. So I know how you feel! I think we all get scared when we get sick! Our immune systems are so much different than the average person.
But hope you stay well and do okay! Hugs

Hi Carolyn!

Anonymous
August 25, 2008 at 6:52 pm

So sorry what you have had to go through. Having it two times, I too would be afraid of it happening again. I hope that you get better soon and hope you never ever have to see this disease ever again. Meaning you had it twice to never get it again and you get well soon. I have Systemic Lupus and deal with Flares alot and that too is agrivating to have. I deal with pain alot. Then this CIDP kicked in and now I am dealing with two issues instead of one. Not easy either. Glad you posted this and just want to wish more better days ahead.