Hi Amy! I would have posted sooner but have been feeling poorly the past two days. Yesterday I was walking around not feeling a leg. Thought I was going to fall several times and had to get the walker out. Stayed in a chair most of the day.
I know how you are feeling. I saw a remission of 3 years dealing with Systemic Lupus and Neuropathy and then after getting run over by a SUV things went down hill and I suffered for two years. Then had the surgery on my spine thinking after the surgery everything was going to go back to normal. But ended up getting an attack on my nervous system and been struggling ever since.
And next week is going to be another battle. Not knowing my future. I know how you are feeling and the let down is the hardest thing to do. This site has helped me cope so much better in understanding what is going on with me with CIDP.
We all get depressed from having this and we all want to be normal again. But sometimes that is just not possible. I always try to say to myself that there is someone far worse off then me. And that helps give me strength.
Seeing someone is a good thing and getting some help may bring you stronger in fighting your battles with this nasty disease.
I will keep you in my prayers and hope that you outsmart those doctors and go into remission again. There is one thing that can never be taken away from us! Hope! As long as we keep Hope then maybe that Hope will someday come true!
You can come here anytime and vent all you want! That is what we are here for! To be by your side and help you feel better! A big huge cyber hugs coming your way from all of us! Hugs