It seems that stem cell therapy makes it possible for nerves with axonal damage to come back either by sprouting or regeneration. Not only Alice, but others have had the nerves return as you’ve pointed out. Hope trumps positive thinking, because the Stem Cell results have shown the dramatic changes that can and do occur. Nerves grow back slowly. Time is on your side.
Hi Alice! I have not been online much for a while due to illness in my family but that is doing better now! Just read what was going on and want to tell you that you are in my prayers and hope something works out! Wishing you the best and don’t give up! Hugs
Hi Alice! Alot of Chemo drugs can cause higher risk of infections. And with having a suppressed immune system, I think I would call my doctor and see if he can order you an antibiotic. I alway’s try to doctor myself up first to see if I improve a day or two. No improvement then I call my doctor.
But your body will tell you what is best! If you think you need an antibiotic then I would certainly call! Hope you feel better soon! Hugs
Hi Alice! Hmmm! Maybe it’s a possible that the treatment is taking away inflammation on the nerves causing them to come back to life and yet you still have some nerves that still need healing. Also! Have you been over doing it. I know when I feel better at times, I get more energy and then I end up doing things my body is not used to doing. Then I get more pain because of it.
Glad that the treatment is helping. And hope you continue to improve getting better. Wishing you my best! Hugs
Hmmm!:( I just read that article and will talk to my doctor about this one. I had a nerve biopsy up North back in 1993. At that time their were no answers as to what was causing my problem. But then I got diagnosed with Lupus. That biopsy actually showed nothing, and after I had that biopsy, I got an attack on my nervous system that was aweful.
I just had surgery on my spine and after that surgery, I had another massive attack on my nervous system. Totally forgot about what that nerve biopsy did to me back then.
This is rather scary! In order to maybe get diagnosed, I may end up risking my life doing it. I do plan on talking to my doctor first. Thank-you Alice for showing me this. I am still learning about CIDP and GBS!
Wanted to see how your day went. Did you get the info packet from tjhe GBC/CIDP foundation yet? If not the foundation the others were talking about ph# is: (toll free) 866-224-3301 and ask for a neurologist in your SanFran area that specializes in CIDP. In that packet also is a yellow pamphlet that list names of liasons in your area-perhaps Mrs Jo McEvoy, Larkspur ( ph 415-203-5656 ) could help you too or refer you to the correcr liason who could help you, with some good neurogolists. Hope you are doing better. Emma
took a quick lunch break-friend brought over lunch……you will hear from a lot of people. Just keep talking to our family here..so many good people and so much you can learn from others………figure out a way to get that new puppy in your lap and get lots of kisses. Here’s a big hug from me………