Hey Stacey! When you see your doctor. Ask him for a Vitamin D lab. That too can cause severe burning. In fact the FDA announced that Vitamin D is not in enough foods and many people are not getting the sunlight they used to get causing Vitamin D Anemia. Since they started me on Vitamin D I have noticed less burning in my arms. It’s worth a try. Hope they get you well soon! Ohh! Have them check your thyroid too! That kind of burning too can be caused by thyroid. Hugs
Hi Stacey! Ohh boy! You sound like me many years ago when I first got diagnosed with Lupus and was just starting to get better. My favorite saying ” I don’t have time to be sick” I got too much to do! Or! My life is going by fast and I have so much I want to do!”
Stacey! I think we all have said those words.
Everytime I would say those words and started fighting back, the lupus would kick in and would tell me different causing me to get let down each and every time.
I eventually excepted my disease and learned it’s limits. Knowing what I could do and what I couldn’t do. I have had nerve damage for 16 years. And in those 16 years. When I would get an attack as much as I would try to fight it. It would make me worse.
Whatever you do! Please don’t over push yourself when you are flaring. That is a sign when your body is telling you to slow down and rest. Pushing yourself will only make it worse instead of better.
My life too is going by fast and I have missed alot of things I wanted so badly to do. I pushed hard alot many times and wanted to be able to say I achieved something in life.
Today with the way I have been being sick with alot of things. I have come to one conclusion. My life is too precious and everyday I get the chance to wake up is another lucky day for me. I don’t over push myself anymore. I take it one day at a time one week at a time.
There is still so much I want to do. But if it don’t get done, it just won’t get done. I honestly believe me over pushing and trying so hard is the main reason I am in the way I am in today. Life is too short! Enjoy what you can and don’t overpush!
Your life is more valuble than overpushing and trying to achieve. When your body tells you no! You listen to that and take it easy! Even if it means 2 months, 1 year or 2 years. You take care of you!
I hope you start feeling better soon. I still have the burning pain since May 2008. It is finally starting to ease up. But I have been unable to work for a while now. I miss work and we need the extra money. But I have faced it and do now for my husband at home and try but my body has told me no. When my body says okay! Then I do what I can but I will never over push myself unless I have no choice. Get well soon Stacey!
I wished I could find many more of us that had epidurals and see what damage it did to them. I think many of us got the CIDP from it! So weird how a few of us in here all got CIDP and we all had the epidurals.