Hey Joan! I totally agree about people being misdiagnosed and you are so right. When you see yourself not getting better with certain treatments then sometimes it’s best to get a second opinion and even a third.
And at a good hospital too! Even checking about a top notch neurologist!
Joan! I really hate that Bill has had to go through such a terrible time.
Now that Bill knows what he has, he has that chance to fight this. I think Bill is going to be a fighter!
You have my prayers and hugs coming your way!

Hey Joan! I’m proud of you right now! Very proud for standing your grounds. You are trying to save your husband’s life and he made you promise’s and you expect to see those promise’s made! Keep up the good work my friend!
You stay strong and you’ll get somewhere!
He needs that physical therapy. That is what is going to help him gain muscle strength in the muscles that are not damaged and help to get him stronger in the muscles that are no longer working.
I know you are angry but you have many reasons to be. You belong on this site. You really do belong here. You need our help just as much as we need yours. Who know’s? Somebody just like you might get in here in the same situation and you might be able to give them good advice that helps them. So yes! You are a member here and your husband needs to get help in dealing with this.
Stay on him and don’t let him give up. That smoking! I said the same things many years back. And I now have mild asthma with mild copd. And now I have thyroid cancer and having surgery soon. I did quit smoking, but I tell you what helped. Those patches! They work great! And they also have a new medication out that helps stop smoking. The doctors can give him an RX for it. Not cheap but it is well worth the investment!
Now! He has no excuse to stay smoking because you have two things you can purchase for him and that will help him quit.
Let him know also that nicotine causes more harm on the central nervous system than any other drug. Buy him some candy to chew on. Give him a pencil to put in his mouth. I tried that with the patches. Boy did that wood pencil get chewed on! LOL! But it kept my hand busy. I felt like I had the smoke in my hand. Believe me! Tell him I said it will make him feel so much better when he quits. I started smoking at the age of 12 and smoked for 28 years. So if I can be a long term smoker a day and smoked like a phene and quit he too can do it!
Ever heard of nicotine poisoning? Look that up online and it will give you alot of info about what it can do to your nerves and bloodstream. He needs that extra oxygen to help make the nerves come back to life. There is also a free website site called QuitSmoking.com. A support group that helps a person quit and there are many in there using that site. He can even chat with people in there trying to quit just like him.
Joan! So proud of you! Don’t give up! You be the fighter and I think things will get better! Hugs my friend! Hugs
Linda H