Hey Dawn! So glad it’s not a relaspe! Whew! I know this keeps you on pins and needles alot not being sure what could happen next. Maybe the prayers worked but I will keep Kevie in my prayers alot longer in hopes to see him completely well! Dawn needs a nice warm bubble bath and a cup of hot chocolate and a good nights sleep tonight! That will make you feel so much better! 😀 Hugs Dawn! Prayers will continue!
Hi Dawn, I was wondering if your son’s doc called about the maintenance ivig? You are so right about the doctor / patient / family relationship being taxing. I’ve about decided not to have the mri’s (just to rule out something he isn’t going to treat anyway?) but I’ll have to call and justify my decisions to him… wondering if I shouldn’t go on to the neuromuscular sub-specialist. Plus I still want to talk with one of these docs about the ivig…it’s all really draining at times. Anyway, I was hoping you got the call you wanted today about Kevin’s treatment…you are in my prayers.