‘heard the call for aussies’

Anonymous
October 7, 2010 at 1:05 am

Hi to the Aussies (and everybody else!),

This is my first post. This is the first time I have ‘heard the call’ for other Aussies and choose to log on…anybody living in Brisbane?

I have enjoyed reading the forum and wondered where the other Australian’s were…what specialist they were seeing etc. I read somewhere there is only about 12 people diagnosed a year here in aussie land.

I have been ill with cidp for just other 3.5years now. Took about 2mths to be diagnosed, was in Cambodia at the time and was flown to Thailand. So lucky to have a pain neurologist there that knew what it was straight away. But in Australia now with another great neurologist.

I am very interested to hear what treatments Aus/NZ are receiving, just to see if I am in the ‘normal’ range???

I am currently on methotrexate, prednisolone, neurontin, tramal and cymbalta and other bits and pieces for nausea.

Sorry its a long email…guess it can’t be to bad for ‘first contact’!

Cheers,
Linda : )