Have to ask? A few questions….

April 4, 2010 at 9:00 pm

Are you still with that same neuro? Also do you have, or can you get COPIES of your tests under first neuro and then subsequent neuro docs?
What meds are you on now? And, are they working or how aren’t they?
Lastly, what PT have you had since then?
Sounds to me? Like there were either ‘biases’ or sheer ignorance in the initial diagnoses and then severe lapses in diagnostic and therapeutic follow ups.
They dismissed you without additional therapy? Most dismiss this as ‘the insurance doesn’t allow it’? But go and call the ins. co. to see HOW it was put to them? I have gotten that administrative run-around at least five times in the 7 years I’ve had my CIDP issue [and others?], do be assertive! That is the only way you are gonna get anywhere!
Boy this whole thing well, ‘STEAMS’ me! Because WE suffer in the long term. As for the muscle cramps? Calcium Carbonate vs. citrate, plus some magnesium and some Vite D will help you asorb the calcium into the muscles and ease the cramps. Some suggest soaking feet in epsom salts? I got ‘buggy’ with this aspect, so it didn’t work for me. Doesn’t mean that it won’t work for you in terms of asorbing magnesium salts… Taking the calcium etc doesn’t cure over nite. It does take about 2-3 months for it to really kick in. Do keep that in mind. There are NO hard and fast cures for our nerve damages… Just getting ourselves into a right place to cure.
Keep faith and hope. Always.