have them check for CELIAC SPRUE

February 7, 2009 at 9:34 pm


I haven’t been on site for a while but when i saw this question, I HAD to repsond. You mayhave previous read aboutmy situation but was dx’d years ago with B-12 deficiency and was taking shots, pills, drops under the tongue… you name it. They didn’t help. It was only after I had suffered such extreme nerve damage that it had become CIDP, that they realized the real problem. I have a hereditary autoimmune disorder called Celiac Sprue (CS)and had caused the B-12 def. that led to my now progressive CIDP. CS is where your body can not process glutens found in wheat, barley, rye and oats (oats through cross contamination). When i ingest these glutens theycause my bodyto attack my intestines and strip it of the Villa, which is the finger like structures that trap the nutrients from food, for the body to absorb and process them. Since my Villa wwas gone, i was actually malnurished, though not under weight and this caused severe B-12 deficiency.

I know that is a ton to digest (no pun intended;) ) but if you would like more info on this, please send me a PM and i’ll get back with you. It can be completely debilitating to have B-12 deficiency and potentually life threatening to have undiagnosed CS… It is one of the most misdiagnosed GI disorder in the us. They say as many as 1 in 133 have it but only 10% know it. It is easily treated, simply by sticking to a strict gluten free diet and one your body quits taking them in, it begins to heal and with a dailyB-12 pill i’m doing much better. Good LUCK