Have had this problem
March 30, 2008 at 8:53 am
in the past when using IVIG diluted with saline – mine seemed ‘salty’. I don’t have this problem with the smell using a different IVIG with glycine. Same about the headaches – changing brands made a BIG difference for me.
That pain IS excruciating tho!
I DO sweat tho more profusely after infusions. Since I’d just about stopped sweating completely at onset, I am happy to sweat anywhere at anytime these days.
For the first 1-1/2 years of infusions I was gaining 4 pounds each infusion and losing 2 before the next one. That has stopped happening – thank goodness! I don’t know why this has happened, but I’m just glad I’m not gaining any more?