Happy New Year!

January 1, 2008 at 8:11 pm

This forum has helped me in so many ways. I’ve learned more from my fellow gbs’ers than from [B]any [/B]doctor I’ve seen so far! Not to mention the support and encouragement y’all have provided, I’ve really needed it. Since this disorder is not well known, few people (including healthcare workers) know how to perceive our symptoms. Even my loving family doesn’t get this…they think I’ll get up tomorrow morning and be well, full of energy and rearing to go.

Steve, I appreciate you sharing your story and for your prayers. I hope your cardiac recuperation goes well. That’s some major surgery less than a year post-dx with gbs! You’ve been through the wringer in one year’s time! 2008 has to be better, right?! :p

As crazy as it sounds, I [U]almost[/U] wish I’d had a severe case of gbs. Then the guessing would be over as to how or when (or the biggie)…IF, I need treatment! Seems with a mild case, it’s test for this & that, lots of shoulder-shrugging and “well, let’s wait and see if you get better in the next 3 weeks”. My PCP dx’d me over the phone on 12-12 when I described my symptoms. He’s an internist! 2 neuros later, I’m still not treated and don’t know if I need to be…docs can’t decide. If the neuromuscular doc says I don’t need tx, I’ll do OT and PT, rest and wait. That’s my game plan for ’08.

God’s Blessings upon my new friends here. You are a wonderful group of brave people!


Happy New Year

January 1, 2008 at 9:48 am

🙂 I just wanted to wish everyone a very Happy New Year…May it be a happy healthy one. Let it make those of us who are still struggling have the strength and will power to keep going on and up. AGAIN HAPPY NEW YEAR!!