hands shaking

June 29, 2006 at 10:43 pm

Thank you all for your replies. I also have MG (myasthenia gravis). The neuro doesn’t want me to have a reoccurrence of it. It is thought to be in remission, but who knows. She said the summer heat can exascerbate it and wants me to take the imuran and prednisone for that reason. In the cold weather she will take me off them. She wants me to take mestinon when I feel fatiqued. It’s been 14 mos since I woke and fell limpless to the floor. Had IVIG for 4 days (that’s all hospital available at the time) and in rehabilitation 84 days. Just finished morning PT sessions at hospital last week. Can’t walk yet without assistance. Doing aqua aeorobics 3x wk which helps. Use rollator getting around. It’s tiring. Saw 2nd neuro in NYC who confirmed I had axonal GBS. He did EMG and NCV more extensively than my Kongston, NY, neuro.