Great that it’s working.

January 9, 2009 at 12:22 pm

I was supposed to be on Gammagard in the hospital infusions I had [as I’d had that brand in the doc’s offices prior to their discontinuation] and I’d found out that in the last 6 months I was infused? I had the whole rotation of ‘brands’ infused without my doc’s or my knowledge. I was getting reaction after reaction or, worse? NO effect at all from this menu.
I’m now on home infusions and have the same infusion nurse each time [I am HER patient!] plus Gammunex, and, it is heaven! I’m home, I can watch the tv shows I want, I can fall asleep in a place I know is comfy, and where if I have to ‘go’? I don’t have to wait for that room to be empty! Afterwards, I can do what I call the ‘benedryl stupor’ for a while and then get on with life. It’s a comfort issue, but, I also know exactly how far ‘fire/rescue’ is from my house, and how long it’d take for them to get here and then me to a hospital. I am fortunate in all that, and am grateful. It’s comforting to know that I can get the treatments at home and be safe, plus should any quirks occur, they’d be quickly attended to!
Honestly? I am preferring the Gammunex to the Gammagard so far….2 years out on it…. But I do believe each of us is different, and what works for one, mite not for another!
May things truly progress well and fast! You deserve it!