Its great to hear the great news!!
Soon your brother will be home again and what an accomplishment this will be.
Keep strong.

what about Canada?

what about canada?

Rhonda & Ryan,
That is such wonderful news, almost like a miracle isn’t it? My neuro told me if the cytoxan works, the CIDP won’t come back, so Ryan should go ahead with his life with that thought; just keep moving forward. Going back to college would be so wonderful for him, he has just been through so much. I would expect continued progress, nerves can heal for up to 2 years after the CIDP is arrested…
Pam

Thanks so much for posting such great news here on the forum. I assume you you will continue to keep us updated? I remember when I first walked at PT (after 2 1/2 years of NOT walking), how wonderful it felt, PT belt & all. I started with a walker for a few weeks, then tried the Canadian forearms crutches, & then two canes, then one cane; all in a matter of 2 months. I still use one cane when I go out alone, but just AFOs in the house. I expect Ryan to recover much better because I was 50 by then, his age in in his favor.

Let’s hope it is very successful and that it will get FDA approval for this disease. What is your ins company?

It is great news that Andy is home from the hospital and that he is seeing life looking up with walking. We are all waiting for news of the new little one–his daughter–we are a great cyber-family!

Acne can come after stress and everyone know he has had a good deal of that–as well as autonomic changes as someone else mentioned.

I also wanted to say how much I admire you as sister and your fierce protection of him. I am glad that he is well enough that you could catch up emotionally with all that happened. It is never weakness to cry for those you love–it is rather a sign of the great love that you are able to share in your family and how strong you all are because of that love.
WithHope for a cure of these diseases

Norb

That does sound like great news…congratulations!!! This really sounds like
it will help you greatly…I’m so happy for you.

Tap…tap…tap…sigh…tap…tap…tap…still waiting on the mouse-ears pic.

😀 😀 😀

Miami Girl

i am so glad to hear your mom is improving and that you got to spend some quality time wither her. You know what is the best though … hearing you sound so positive about all the little things she is achieving. I can understand how easy it would be for family and friends to get bogged down with all the negatives but you really do seem to get strength from the positives however small, and that is really the only way you can face this illness.

As for the crazy talk, i agree with the idea of icu psychosis. I had the most bizarre hallucinations that were so real to me (and to make things worse they had bits of reality woven into them like the names of nurses, doctors etc) which just made them even more real to me. I’m glad that i was on a vent at the time and couldnt talk as i’m sure i would have been sent to the psych ward if i actually said what i was thinking. I h ave read it is due to a combination of factors – the meds you may be on plus the stress of being in icu, lack of sleep, constant monitors going off etc. I dont know if it would continue in a rehab hospital … but rest assured many of us have been through some strange things as a result of GBS and you can just put it down to another thing we dont know how long it will take to improve!

Hello Dawn,
This is happy news to hear. It sounds like you finally have a diagnosis and even though he has GBS, it’s a big sigh of relief. The posts read like not one of us has told you not to let your bubble float too high. You know you are still welcome to stay here with us. You would be such a big help to new moms that come here.

[IMG]http://img262.imageshack.us/img262/8305/rosebouquetrs0.jpg[/IMG]

i’m so happy for you. what is the name of the treatment you are on? are they infusions/pills, ? keep on improving!! doin’ the happy dance right along with you.
love,
deb

Hey Norb I’m so glad you are better! Dawn Kevies mom! 😮

CONGRATS! I am so happy to hear that not only are you approved, but you will be getting your back-pay checks. It is hard enough being ill, let alone worrying about money. My husband just retired yesterday, so I will finally be going on Medicare on Feb. 1st. I won’t miss the $1000 yearly decuctible we had, but now the govt. will be taking $93.50 each month out of my measily SSD checks. All in all I think it will be a wash, as I still need to keep his insurance as a supplement… Best of luck & have a great Christmas!
Pam