Great information on experiences of MFS, new thoughts….

March 20, 2008 at 2:00 pm

I am new to this site and have to say the information I have received thus far is awesome. In general the symptoms that I had relate as a perfect match. Now I will just have to wait this out and hopefully be back to normal in weeks or months.

Right now I am in week 5 since on set of very first symtom and 10 days since I checked out of my 5 day hospital stint. I am still numb and cross eyed. I have noticed that where I would have a “good” day then a “bad” day, I have moved forward to pretty much all good days now. Sleep is much better now, I went from getting maybe 2-4 hours sleep right after my hospital stay to almost normal sleep (7-9 hours) Headaches still predominate in the AM, but are controllable. Just tried popping some Shark Liver Pills yesterday and my wife also purchased someting called “Myelin Sheath Support” at the local Vitamin Cottage. I have not taken any of the Sheath Support yet as I wonder if I should wait til I start to get nerve function back?? Wife also came home with “Host Defense” a mushroom product that supposedly increases NK Cell activity… I have not tried the mushroom item yet, as I have not run by my Neurologist. Then too, she told my not spend my retirement on some of this stuff. I guess any thoughts from the field on this?

Still wonder how I could have got this syndrome. Anyone heard of the Herpse virus being involved? Weird but on two occasions as I was coming down with this I took a total of two Acyclovir tabs and my symptions actually seems to ramp up after ingestion…. Maybe my imagination. Then too, I work for a processed food manufacturer and sample samples all the time. Maybe another relationship?

Just more food for thought.