Goodney? I’m going to …

February 22, 2011 at 9:11 pm

PM you…
Many many other issues can contribute to a CIDP diagnosis? Yet, are not apparently related to IT at the time of that diagnosis.
I speak as one who not only has CIDP, but Hashimoto’s thyroid, Cancer [treated and mite be declared in remission in a few months] and a few other things that all ‘hit’ me with in the first 3 years of my CIDP onset. It gets squirreleyier from there?
Someone once said that IF you get ONE Immune related disease? Expect more! All I can say to that is YES! I could make you paranoid at times? But, rather, it’s bound to make you a better researcher of your tests, and their results…THEN you can really ask key questions of your docs about the why’s how’s and NOW? What to do’s? Usually you can expect a ‘get back to you later’ answer? Bug them about the lack of getting back to you!
Let your docs know that you are Aware of your problems, concerned about them, and have a strong desire to keep things from getting WORSE at a minimum and better for sure! My hardest problem, WHEN I HAVE one? Is which ghostbuster do I call? Many of my medical problems are cross-related, and so? Harder to know which key doc is the best one to do the critical stuff.
Yes, It’s not just a scary place to be? It IS TERRIFYING at times. Just know that others here have ‘been there’ and can help you navagate around the blocks. Key words? DON’T PANIC! Ever!!!!!
Don’t succumb to fear, learn! Be smarter than you should? And get copies of all those tests! Then? Search the web like crazy about those tests.
Good luck and hope!