My daughter went for a 1 year follow up with the neuro. He did NCV testing and a clinical exam. Her upper extremities seem to be normal. There has been no significant change in the lowers except a small improvement in the sural nerve. He thinking that since she is stable he wants to do nothing except have us continue to work on strengthening and flexibility. He wants to see her in a year unless we notice a functional decline. Thanks for all of your comments and emails!:)