Found this very informative and comprehensive and I am sure other will as well.

Good stuff thanks for sharing

Hi Jonathan:
It is always interesting to me to read others stories. I have CIDP and had my first onset and hospitalization in March 2001. I can also relate to you the joy to be able to live a fairly normal life again and have those moments that were milestones once, become common.
I enjoyed reading how your life has become happy and healthy again. I wish you all the best.
Tammy

Thank you for your message about exercise.

My son (29) was diagnosed 5 weeks ago (after a 3 week onset) with GBS. His legs are no longer of any use. Walking is very difficult and also his coordination is terrible.

The doctor released him from the hospital after a 3 day monitoring for vitals. They told him go home and contact his primary. No other information given to him.

His primary checked him out and told him to come back in a month to see his progress. Progress? He’s worse. His check up is on the 6th of June. I have been trying to convince him to call and try and get into some type of exercise program to keep his muscles up. I’m not a fan of traditional medicine or medical beliefs. No professional has given him information and/or advise on this syndrome.

I am frustrated for him and worry that there will be permanent damage. He has gone from being extremely active as a construction worker to daily sitting and waiting. There must be something that he can do to aid in his recovery.

The doctors didn’t think it would be a good idea to do the blood stuff. They told him just to wait.

Any info would be greatly appreciated.