Good questions?

March 20, 2009 at 1:19 pm

Ironically, most medical descriptions of CIDP are very similar to MMN [Multifocal Motor Neuropathies]. Especially in the descriptions of how the muscles are affected. Stranger still to me is that most folks I’ve encountered who have CIDP usually have more sensory effects than muscular.
That doesn’t mean that it’s one or the other? At least not at first. Testing, testing and more testing determines the distinctions I guess.
Two points to keep in mind?
First off, treatments for both are similar – the steroids, IVIG, or plasmapherisis.
Second, once ‘injured’? A person tends to use our bodies less. Whether due to the fatigue or pain it comes with the territory. Less use? The muscles work less well. Ask for a good physical therapy program if you can…and make sure your doctor includes training on how to continue many exercises at home! While I’ve been prescribed going to PT say, 3 times a week? I can’t endure that…so With a home program, I can go twice a week, do my thing at my own pace at home and get that much longer supervision as to whether I am doing it ‘right’.
Keep this all in mind, and don’t lose hope. Regain what you can the best that you can!