I have a thyroid problem but I’m doing okay with it so I don’t know how much I can help you. I started with the thyroid when I was in my twenties (I’m 65) and I was really really bad, you name the symptom and I had it. I’d run both hypo and hyper. Hand tremors, fatigue, weakness, (to the point I had to drag myself up steps) tingling/prickling in hands, etc., etc., etc., sounds like CIDP, doesn’t it! I’ve forgotten what I had to drink (maybe iodine), but I had to drink it out of a lead container. I wish I could remember more, but this was thirty years ago. I didn’t pick up the symptoms of the CIDP I had in 1998 because they were so similiar to the thyroid. I remember one very weird thing, I would CRAVE coffee and drink it by the bowl. I am fine now and don’t have any problems as long as I remember to take my synthroid on a daily basis.
I hope all will go well with your new doctor. It helps us so much if we find the right doctor. My most compassionate doctor, the one who I look forward to seeing, am most comfortable with and can talk to, is my podiatrist. I wish he was a neurologist. If a doctor is willing to learn about GBS/CIDP, research, listen to you, consult with qualified neurologists, I would continue to see him/her.
DON’T GIVE UP ON YOURSELF. We do have hope.
I agree with the other’s that you are a part of our family, I don’t think anyone would say you don’t belong. It seems to me that your troubles are with doctors and not the fact that there is no hope. I was told by my first three neurologists that I had no hope and treatments would be useless. Then I got a computer, learned how to use it and found this wonderful family and started questioning things. I went through a total of eight neurologists, but two were for consultations and number six was my great one. I am no longer progressing and I owe that to an awesome doctor. I am doing great with the syndrome and if I can apply myself to exercising again, my potential to walk again is good. I lost my motivation due to stress.
Keep looking for the right neurologist, decide how far you can travel to see one. Perhaps you can find a neurologist who’s willing to consult with a really well informed one. In a worse case situation, are you able to make a move. I think that’s a big problem, some of us live in areas where there are not great doctors.
Above all, NEVER NEVER NEVER NEVER give up.