Getting rid of braces…

Anonymous
November 19, 2006 at 7:33 pm

Normally, I would say the same thing to you as Doc David, that he is doomed for life with AFOs. But, if he can truly go into remission with his CIDP; which I believe is more likely in the case of young people, & the nerves are no longer being attacked, then I believe that there can be some nerve regeneration for the first two years after the CIDP has been totally arrested.

On the other hand, if it is a case of getting IVIG once a month, then again when the nerves are being attacked again, then I would say no. I can empathize about the braces, I have been wearing them since I was able to start walking again the summer of 2004. I already know I have healed as much as I will heal, & that I will always need them. But in someone so young it might be different. I agree with you that one should never give up hope, but after a certain amount of time, we must accept the inevitable…