GBS turns to CIDP in my case
I was originally dignosed with GBS. I was told I’d be back to work in six months. Then my nerologist said “oh you have a bad case” then promised I’d be back in a year. My condition did not improve. The first year I almost died (literally) and had to learn how to walk again etc. After the first year I did not see improvement for another three years (during that time my nerologist changed my dx to CIDP); it was very discourging. I was thankful to be able to take care of my children. I begged God to just let me be well enough to do so. Then when I could (with a whole lot of limitations) I of course wanted more! I wanted to go back to work and live a normal life. Yet, nothing helped.
Now, all of a sudden, I’m stronger and I’m able to go without plasma pheresis (I’ve had 106 treatments). I’m not sure if I’m well enough to go back to work or not. I’m worried because I keep reading about peope relapsing. I just want to be done with this thing too!!!!
The best thing you can do is keep a positive outlook. Count every blessing and every milestone. I know it’s really hard when all of your goals have been instantly changed for you. Keep a determined attitude. Never give up. Exercise when you can, rest when you can and dont’ be too hard on yourself if you have a bad daY.
Wishing you well…