GBS or CIDP…

I was rediagnosed with CIDP when after 8 weeks my symptoms had not improved at all. I never had any periods of “getting better” even after 5 PE treatments & numerous courses of IVIG. But then the progressive form of CIDP is very different than the relapsing/remitting.

I think it is so important not to overdue it during the healing process; I still believe people tend to push too hard & underestimate the importance of resting the nerves so that they can have time to heal. One patient with GBS who was with me in inpatient rehab at Mayo was pushed too hard & he died; just quit breathing one night. As sick as I was, I always wondered what Sanders was even doing in rehab, he had absolutely nothing to work with. He should have been in the ER in my opinion…
Pam