gbs/cidp cidp guidelines

Anonymous
May 20, 2010 at 9:17 pm

homeagain,

amen regarding the ‘didn’t know’ doctors and the misdiagnoses. The NIH, John’s Hopkins and a recent GBS/CIDP Seminar I recently attended seem to say what you did, that is GBS is acute. The Seminar speaker stated if it’s longer than 7 weeks, it’s not GBS. Well, apparently treatment is the same anyway, right?

Try this site: [url]http://pnsociety.com/Guidelines_CIDP.pdf[/url]

They talk about guidelines for definition, investigation and treatment of CIDP. paper date appears to be 2005. pns = periperhal neuropathy society.

Perhaps this link is even better, it’s from this web site, somewhere, the paper is dated 2009 and the link is dated March 2010.

[url]http://www.gbs-cidp.org/pdf/CIDP%20Guideline%20EJoN%20March%202010.pdf[/url]

It is so very difficult to go to a doctor for an answer(s) and then find out later, oh, darn, that wasn’t right. You’re right, our damage is done.