GBS and Menactra meningicoccal vaccination

October 30, 2006 at 12:18 pm

It is good to see that more people are getting the information about GBS and the Menactra meningicoccal vaccination. We believe that our daughter got GBS last year, 31 days after receiving the vaccination. Originally, the CDC and FDA announced on Sept. “05 that 5 teens from the northeast came down with GBS after the Menactra vaccination. Very few people got the news. It was a miracle that my husband saw a blurb about it on the Dow Jones scrolling news on a Friday night. We alerted the doctors who had been trying to figure out her illness for 2 1/2 months. They did testing for GBS, all came back “normal”. We now believe that the window of opportunity for testing was long gone. In April of ’06 there were more cases confirmed and this last announcement on Oct. 19th or 20th said that there were 17 cases in all, 15 of them between the ages of 11 and 19. I don’t think that the CDC, FDA or the manufacturer- Sanofi-Aventis are doing enough to get the word out. Such a miniscule percentage of the population have heard about it over this past year. I have a google alert set up on my computer for the past year, so I get news continually, not always about the relationship about the GBS and menactra, but everything in the news about each. Our first encounter with the news last year was a “God” alert. I’m sure that the milder cases just go undetected and there are numbers of patients who are undiagnosed and therefore under-reported to VAERS. My daughter still suffers residual effects, although leads a fairly normal life of a 19 year old. The most damage that she suffers is from the lack of support that she had from her doctors. So, she has no one really to answer her questions or guide her now and gets depressed and angry. I am going to contact some of the doctors in NYC tha Gene suggested. Maybe they won’t blow us off.