Gaining Strength

May 4, 2010 at 5:49 pm


I gained some strength on the initial load dose. But when they took me to the maintenance dose, I made no progress. So after three months I was put back on a load dose every three weeks. Also I slowed down on my work schedule and literally took a nap about four days per week for about four months. It was amazing that I could sleep at night, but I did. I think your body needs lots of rest during this period of time. I have only taken IVIG, have discomfort but not real pain. I am very functional, but not any where near the strength I once had. I have been on IVIG for two years now. I would say it probably took me nine months of load dose IVIG before I was back to a close approximation of normal. When I have tried to go to four week intervals, I start losing strength. I am still looking at other ways of building my strength, mostly with nuitrition. When I have tried to exercise, I am exhasted with no energy for anything else, so have elected to try to lead as normal a life as possible and use my energy that I have in that way.

I think your age will play a big part in your recovery. I wish you the best and keep us posted on anything you learn at KU medical.

Donna M