Freaked out years ago by tongue involvement.
It’s been years. On the other hand, I never had GBS.
I did experience brief, random and very rare episodes of ‘tingling’, similar to a light numbness, on my tongue. It really scared me.
Additionally, I used to choke on food or pills when swallowing. Say, for example, something the size of one aspirin.
I was treated on an in and out-patient basis in the hospital for foreign body removal from my esophagus. None of these were life threatening emergencies. I could always breath and talk, yet not be able to swallow. Not even salivia.
Thank goodness, those symptoms apparently resolved, at least they went into remission, on their own without any re-occurrence since that time. It was the 1980’s. 1981 to 1984, as I recall.
Your question reminds me of the neurologist who said “I don’t know what you have. There is nothing else on this form for me to check so I’m going to check ALS.” I never went back to see him, awards on his wall or not.