June 30, 2007 at 3:19 pm

Hello Cara,
I don’t know if you have GBS or CIDP, but if it’s CIDP, I was wondering if you are getting IVIG’s or PP/PE as a maintenance, like once a month or every two weeks. I have CIDP and some doctors will just do an aggressive series, then stop it and wait for you to tell them how you are doing. If you are not on a maintenance, maybe that’s what’s wrong and you need it. Sometimes we just overdue and push ourselves WAYYYYYYY too much at trying to have our “OLD” normal life.
If you are still not feeling better, call your doctor and tell him/her it’s an emergency, you have to have an appointment MUCH sooner. ALWAYS listen to the way you feel, go to the emergency room if that proves to be necessary.