Today I had a strong fall to the floor, and this week everyday have foot drops as I had not have for a year.
It seems the ALA is loosing its power, and is the end of the “primavera” (spring in spanish) I´m having. Maybe I go for another round of 3x600mg instead fo the 1x600mg maintenance dosis. Or may I wait until more sympthoms flare up and visit my neuro.
Thanks for the good wishes. I do not wear leg braces and am okay with a cane if I watch my step and don’t push myself. A year ago I investigated a new electronic devise which is attached to the ankle and has sensors implanted in the shoe which works for foot drop by lifting the toes and front of the foot up. I had the demonstration at Braintree rehab in MA. At the time I didn’t need it but was impressed that it worked. FYI just in case you missed it.
I have foot drop following a motorcycle injury, which injured my sciatic and peroneal nerves. I’ve had several different AFO’s which helped but not significantly. I recently received a toe-off AFO which was a god send. I can now walk comfortably and I can even jog on a treadmill. If anyone needs an AFO, look into a toe-off. It may make your life better like it did mine. Best of luck and GOD bless
I am not saying that it is impossible to see more recovery after 3 years, but realistically probably not. Have you condisered wearing an AFO on the one leg, or is it not that bad? All things considered, it sounds like you are doing really well for one who has CIDP. Good to hear from you again…