September 5, 2010 at 11:18 am

Hello Lee,
I thought you’d like to hear from one of the “oldies” still hanging around the forum. How well I understand numbness. I have never ripped off toe nails because I put on ankle high boots (even in Florida summer) from the time I get up in the morning to the time I go to bed at night. I can still have days where the numbness is so severe I just draw in my breath waiting for it to get back to a syndrome numb. And you can get normal numb over syndrome numb. AHHH, fatigue can be so debilitating that it controls your life and I don’t always have the energy to push through that fatigue so I do things in spurts. FRUSTRATION is another thing that can control us but we just have to learn how to make a new me.

BUT, I can look back. I am better then what I was and I am in a long remission.