October 28, 2006 at 2:42 pm

hi gang. i know how you feel. (or don’t feel) i can feel some temperature, but i can’t feel wet or pain until it’s too late. i love to cook and while trying to boil potatoes for potato salad, i put a fork in the water to stab a potato to see if it was done. what i didn’t feel was the (boiling) water my thumb was in while checking. needless to say, i boiled my thumb along with the potatoes. i also fell while going through my i.v.i.g. and chemotherapy treatments and broke my leg and tore my a.c.l. i kept trying to walk on it, but my leg didn’t want to cooperate. after getting an xray i found out why i couldn’t walk on it. i also keep breaking fingers and toes. i’ve stabbed my foot a few times trying to empty the dishwasher, dropping sharp knives on my foot. also broke a few dishes on my foot. it’s very frustrating at times, but this is the hand i was dealt and i have no choice but to play the hand that was dealt to me.
i just tried to ride a 26″ 10 speed bike for the first time in 5 years. i found out i couldn’t. my balance is too off. so i’m going to take my bike to the bicycle shop and have training wheels put on it. i discovered this summer that i can’t maneuver my hands to put my hair in a pony tail. i cried for a few minutes and bought a different kind of hair contraption that i can use. my body is disabled, but my mind isn’t. (well, i guess that’s debatable too).
this website has really helped me cope with the way my life once was and how to deal with the road ahead.
12 more days ’til our sandals st. lucia trip. i’m determined to go parasailing. i did it before i got gbs. i don’t see why i can’t do it now. being attached to a life jacket and a parachute; what’s the worst that can happen? 😮
thank you all for listening to me (kvetch).
anyway, get plenty of rest (doby). sorry, i still don’t know your name. hope your friends are helping you take your mind off of things. talk to ya monday…………..