Hi Stacey,
I can only tolerate standing on bare feet for less then two minutes. It’s a difficult sensation to describe, but the closest I can come is to say that it’s like I’m walking on a rocky beach. I cannot stand up in the shower or stand on a wet floor, again it’s difficult to describe, but on a wet floor it’s like I have no traction.

I have no idea why this is part of a neuropathy.

Hi Stacey,
Sometimes I use an electical cord to explain what happened to me, but I don’t get too detailed because people who never heard of CIDP will be lost. Almost all people have a TV, so I tell them the brain (I use brain because little children may not understand the nervous system) is the TV set and when the cord is plugged into the wall outlet, it works. But if you cut the cord, it doesn’t work anymore even though the TV is still there and hasn’t been damaged.

Most of the time though, I just tell people that what I have is like MS. The majority of people know what MS is.