I just want to share with you that I am still recovering from GBS also. Even though now I have been back to work for almost a year now working 8+ hrs days. Diagnosed in sept. 06. I must say I would not have gotten this far without GOD & my wife & children in my life. I thank GOD for every step he allows me to take, and my wife for encouraging to keep at it when I have those frustrating days and feel like giving up. No one knows what WE are going through unless they actually live with you.
Well I use to be so afraid of the steps in the early stages when I was able to start walking again, I am now able to go up & down without the use of the handrails when I am feeling BOLD. I still suffer from a slight lower back pain, and numbness in the feet ( nothing that ALEVE don’t care care off). I am walking better despite a slight limp due to the hips still weak per my PT. I haven’t had a fall now in months. When I trip over things I can catch myself now. Where as my last fall, I was able to break my fall with my hands, but boy did my back hurt for a few days. I didn’t believe I would get better when my NEURO & PT’s told me I would. It just takes time. I am able now to walk greater distances now like grocery shopping, malls etc.
without feeling as fatigued anymore.
It might seem far fetched but I was exactly where you are now during the early stages. I was in ICU for a week, bedridden for a couple mos, wheel chaired a couple of more mos. One day I tried to stand up & I did, it was at that time I knew that there was no turning back. I was then ready for the walker which introduced me the to the cane finally given that up. THAT WHOLE PROCESS TOOK ME ABOUT 8 MOS. I just couldn’t believe that things would get back to normal. I am living proof that it does get back to normal. GBS affected my equilibrium & my left knee tends to be tight at times. However, a friend loan me their TENS UNIT and what a difference that makes for me especially for my lower back. I would now say that I am probably at about 78%. I am able to run in place, trying to work on moving forward when I run now.
KEEP IN MIND IT TAKES GOD (FOR STRENGTH) TIME, & PERSISTENCE.
GOOD LUCK TO ALL IN YOUR RECOVERY.
HOPEFULLY THIS UPDATE CAN INSPIRE YOU TO GET WELL SOON.
MAY GOD BLESS YOU & YOUR FAMILY.
SO TAKE IT LIKELY AND HAVE A WONDERFUL 4TH.