emma and others–

Anonymous
July 26, 2008 at 1:27 pm

i had some of the usual side effects: headache, fatigue, flu like symptoms, etc… but my cidp is on the excruciatingly painful side– at least it seems to be when reading other’s stories. so– the side effects felt like child’s play compared to the months of pain i’ve been in– i guess that is why i minimize–

i “think” i have more feeling in my legs– hard to tell– pain and balance are still awful…

i may have a little bit more strength in my legs too– but only a bit– like when i use my legs to lift up onto a higher surface, for example–

due to so many ups and downs, its very hard for me to determine just how much is real, in terms of
improvement…”

i feel down and confused—
perhaps even desperate…

alice