I may have misspoken about CIDP nearly always getting worse. I am basing this on what I have read on the forum… so it is really anecdotal evidence that I am citing, rather than statistical evidence. It may well be that many of us on the forum represent the “hard cases.” I know, for myself, I didn’t even look for this forum until the standard treatments failed and then I started taking CIDP VERY seriously.

It would be interesting to know if there are any stats on sustained remission with standard treatments.

Anyone?

Sharon

When I had GBS, 32 years ago, I was pregnant. The doctors thought that I would have a better chance of recovery if I aborted the baby. I didn’t, thank God. Her name is Emily.

Happy Birthday to your Emily.

You can tell her she has lots of aunts, uncles, grandma’s, grandpa’s, big sisters and some big brothers, one named Nate.
Trudy, natesmom