emily– resurrecting an old post

November 28, 2008 at 8:40 am

how are things going for you now?
i was reading an old post of yours and saw that you tried cyclosporine– i take that now, for the past 2 weeks. i would love to know your experiences and whether it helped at all. also, i would like to know more about the cytoxan…

i really hope you are doing better these days…

i’m still unable to walk unassisted. i’ve had this thing for about 11 months now and am feeling like i want to get more aggressive with treatment. i’ve even been courting the northwestern clinical trial with stem cell transplantation.

looking forward to your feedback emily, and wishing you all the best.