DX response

September 3, 2009 at 11:03 am

I was dx with ASMAN version of GBS. However my recovery has seemed to stop. My neurologist has me getting IVIG 1x month now. There seems to be problems with the antibodies still attacking.

I have no idea if that means CIDP or if this the best I’m going to get. My diagnosing hospital’s ER sent me home twice. Then The neurologist didn’t order the EMG or LP until Friday even though I was admitted Wednesday night. I wound up being paralized hands, legs, pelvis, stomach, face, and mouth. I have lots of residual numbness in those areas. I’ve lost my center of gravity. I was transfered the Tuesday after my LP to another hospital because my neurologist was going on vacation.

So lots of anger there too.

Thanks for the ideas.