Dx of CIDP…

October 16, 2006 at 7:57 am

I have sent you a Private Message, so please check your box. I am one who had to go through many many test before my dx was changed from GBS to CIDP. That is because I went downhill so fast when the illness first struck. But just because IVIG does not work for you, why are they telling you it could be ALS? IVIG, plasmas pheresis, & steroids did not work for me, & I still have CIDP & nothing else. Mayo finally gave me the correct Dx in the middles of May in 2002, after I had been dx with GBS in the beginning of April 2002. We are all so different, but we all have CIDP. I am thinking a lot about you & just hope that they find the right treatment for you.
BTW, we are neighbors, as I live in MN…