Dr. Gareth Parry is located at the University of Minnesota Hospital in Minneapolis, MN. But he has been known to work with other neuros from out of the area if they contact him regarding a CIDP patient. I remeber we talked for quite awhile on the phone some time ago. If you want to talk again just PM me & I will give you my phone number or I could call you. Dr. Parry has been my neuro since Oct. of 2002 & I think he is the best. Remeber what a severe case I had? Well, I live a pretty normal life now, all things considered.
[QUOTE=deanop]Well it didn’t take me long to relapse from aprils round of ivig….I was feeling pretty good from mid april to early mid may… Saw dr. Parry May 12th, and was feeling good, but by wednesday some slight symptoms started coming back, and I wasn’t active enough on seeking treatment until yesterday..Big mistake….I guess I was still in denial phase of cidp… I was hoping for a better outcome… From here on in, I pray I’m a lot more proactive on this stuff….I’m gonna go with the pulse steroids and hope for the best… Meanwhile, I feel like the last couple months of getting stronger and feeling better got wiped out by waiting 7 days! Don’t let this happen to you! I’ll keep you posted, on how the stuff works…deanop
I’m having another round of ivig right now, and has stopped progression of numbness/inflammation/demylination, but it sure caught me off guard as to how quick it came on…[/QUOTE]
I was wondering where Dr. Parry is. I have seen people mentioned his name but do not know his speicality. Someone suggested I take my husband there for a second opinion.
In the past 5 years, there have been numerous meetings of this group in the Twin Cities. I was really planning on making this one, but since my husband just got out of the hospital on Monday after an appendectomy (with complications, of course), it will be close. They gave him a 6 week recovery, can’t drive for 2 weeks. Thank goodness he retired two months ago. But I would love to see Dr. Parry again, as he is my neuro but I haven’t seen him since August of 2005; I really haven’t needed to fortunately…