Dont settle for less!!

March 17, 2010 at 3:39 pm

Hi there, a quick note for you as am rushing the kids out to school!
If ivig is working for you as you indicate, then i would be seeking more regular treatment. Being your age, I thought they would want to keep you as well managed as poss. You have so many more years ahead etc!!!!!!
I too am your age and have been living with agressive CIDP for 3 years now. I am well managed, therefore lead a full life, care for my 3 young children, work 1 – 2 days a week and run 40km a week plus lots more etc, skiing, triathlons. To stay this way though i receive IVIG every 2 weeks (just tried 3 weekly but the weaknes and sensory loss started to creep in) and have had as much as IVIG twice a week! (Due to trial and error I also require immunos, and pulse methylpred) Everyone is diferent so tailoring treatment to the individual is a must. You need a doc that is prepared to get you to your optimum level of functioning.
You go girl and get what your body needs! There is light at the end of the tunnel!!!! Stay strong.