If you need IVIg, don’t wait until you are feeling REALLY bad and aren’t functioning all that well, get it before the symptoms hit you hard. The idea behind it is to make sure you get it to allow your body to reach some sort of “plateau” state….without all the ups and downs. If you can get that plateau, then maybe the anxiousness will subside.
I hope that you get what you need. At any rate, I call the doc when my symptoms get bad enough to wake me at night, or I am restricted in exercise, like Skye.