Don’t know anymore!!

July 4, 2006 at 5:48 pm

Probably I’m to “good” to be treated with medication. And even if I needed medication, they don’t know exactly what to give me. Believe me when I say that I didn’t know how to react. Am I dealing with a bunch of idiots here?! I told them about the medication I read about on this website, and they never heard of it (maybe it has another name here, we’ll look in to it). I left in a very angry state. There was even a doctor present, who had only seen [B][U]one[/U][/B] patient with GBS in his carreer of 20 years practicing medicine. When I said that I probably have CIDP instead of GBS, they had to look it up. (what exactly is CIDP??????) :confused:

I had a day now to get over this terrible visit, and I’m not going back there. I’m going to find myself a specialist in this matter, even if I have to go to another country. Sorry, I’m very confused at the moment and feel pretty much left on my own. Well, I told you guys that I would post the outcome of my visit, but whats the difference……………………