I am now 5 years post my GBS onset. I remember my time in in-patient rehab. And I remember my time right out of the hospital. I am happy that you are out of the hospital at your two month mark. I was still in in-patient rehab in a wheel chair and working with a walker. Two weeks after release from the hospital, we were having a family reunion in a town that was a 2-hour drive away. I had my walker, comfortable clothes, and we stopped half way there so I could stretch my legs, because they were starting to go numb after only an hour in the car. But, I went anyway!!!!! I had decided, while still in the hospital, that I wasn’t going to let the GBS stop me from doing ANYTHING that I wanted to do. Even now, when I do something that I haven’t attempted since before the GBS, my body reacts weird, but I don’t let that stop me. I haven’t been to an amusement park since before my GBS and I am going to go to Cedar Point in a couple of weeks. I tried ice skating again just 4 months after release from the hospital. I wanted to see if I could do it. I only lasted about 30 minutes before I was done, but I DID it! I was happy that I had tried.

So, in summary, DON’T LET THE GBS STOP YOU FROM DOING SOMETHING THAT YOU WOULD NORMALLY DO!!! You will be happy that you did it, even if you have to modify the way in which you accomplish that activity.

Tonya Correll
GBS May 15, 2005

Hi Lenny , it has been a LONG time since I have been to the GBS site. My mom was in her 70’s with her GBS and also paralyzed from nose down, on vent etc. That was Oct.12th 2004, she is now home with dad, using a walker, talking, feeding herself , able to get up from chair on her own with walker in front of her, and ALIVE ! She has nerve damage but she is still able to enjoy life with her family. There are days she is depressed but she made it and is her to see her grandchildren grow up and many visits from friends and family. Life is so different than what mom and dad thought it would be for their ” golden years ” but some of the doctors were wrong, mom did get off her resperiator too and a few told us she never would ! your mom sounds like a fighter like mine, don’t give up , my mom didn’t and she is here today loving and laughing with her family.
Jodi