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Anonymous
December 28, 2006 at 9:24 pm

Anyone reading all of the posts realizes that there are so many kinds of patients among us. I think picking one patient is giving the wrong idea about GBS. Should they tell the story of the person who couldn’t get the IVIG for 2 months while the insurance company debated whether or not to cover it? He finally decided not to get it and used yoga and homeopathics. Or do we pick the person who was helped by the IVIG or the person who wasn’t or the person who got aseptic meningitis from IVIG? All of this I learned from our posts.

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Anonymous
December 28, 2006 at 2:32 pm

Hi Peggy:

It may not come off at all – depends on whether we can find a suitable (in their eyes) patient on which they can focus.

Barbara