Please understand that we are not professional counselors, we are people who live and deal with syndromes that turn our lives up-side down, so we can get touchy by post that are demanding immediate attention. We just can’t do that, we’ll respond and try to help ASAP for us.
I don’t know how much we can help you, so many of us just don’t know how to fight the jail system, but you can come here to vent.
Don’t give up, you’ve got to find a way to prove your husband does have a chronic illness, then fight from there. We can believe you, many of us are misdiagnosed, accused of faking it or imagining it.
We do care, but try to realize that we are not just advisors here, we are people who suffer from these syndromes too. I think many of us were trying to be normal and enjoy the holidays with family and friends. Also, very recently, we lost a very dear member and we grieved her loss.
If you post again, we can tell you what tests should have been done to diagnose GBS and what treatments need be done for. If your husband has had GBS for longer then three months, you already know this.
You are going to have to be a very demanding spokesperson for your husband and make it know that without treatments, he may get worse. It is possible that your husband may have to be transferred to another prison and in another state so that he can get infusions like IVIG’s. This will be hard on you, but it may be necessary.
Because I wanted to help you, I took the time to find a post by a member who’s brother had GBS and was in jail. She posted under the name “BigSister”. Just click on the MEMBERS LIST, located in the blue bar near top, so you can find her. This person may have the advice you need. She does not give an email, so you’ll have to send her a PRIVATE MESSAGE. I would keep sending in case she does not read her emails often.