I am going to bump this thread, because I am researching SSDI, and I came across this info.
I have an appt with a neurologist on Feb. 4. I am 51 years post GBS, I was 4 when I got it in 1958. I talked to my Mom at Christmas, because I thought it was in Dec. 1959, which would have made it 50 years. … Anyway, dealing with fatigue, muscle weakness, neuropathy and pain. :rolleyes:
I cannot really help about medicare, but having worked many years in healthcare and seeing the number of problems with getting disability anything including having several people tell me that whole files have been lost–I suggest that you copy all paperwork and note all calls and who you spoke with and about what.
Could someone in human resources/benefits at your previous job help?
Ed Gdula is at the Foundation who works in advocacy. He spoke at the symposium. He might could send information about disability including websites to help. He said he was going to supply his handout from the symposium for people that would like it to get by asking the Foundation. He had a lot of information and I am sure that it would be helpful.
My husband has been dignosed with diabetes, CIDP, high blood pressure, and other neuropathys. He has applied for disability and has been denied several times. He is in the hearing stage now. It has been 18 months now waiting on a hearing. His doctors don’t understand why he hasn’t gotten his disability, they state all the evidence is there. We have lost our home. We have an attorney, he state we have to wait on the hearing. What else could we do, and why would they not approve him with all the evidence.
I just wanted to say that I live in NC and just applied for SSDI and was approved with very little problems. My eval was with an independent DR and he was very helpful. I also recieved SSI for a month while I waited for the approval letter. I was approved in Oct but don;t recieve payment until Nov. I’m surprised you were denied but if you get a lawyer and appeal (do it soon you have 60 days I think to appeal) you will get it.
i was approved immediately. didn’t need to even bother with the lawyer, but i did just in case. unfortunately you have to wait 6 months without pay. once they see the diagnosis of gbs, they usually approve you. i gave them all info. in date order. spinal taps, chemotherapy, i.v.i.g., etc. they never even called my drs. to check it out. hope you get approved as quickly as i did.